Tuesday, October 18, 2011

Blake's Fall Update

The day before school started, Blake had a  check up at Phoenix Children's Hospital.  Blake's appointment was one of praise . He is an "over achiever" and his liver function is improving so much so, that his medication has been lowered to only 4 pills a day (down from 6 at the beginning of treatment, March 2009). Super happy for him!! If his body continues to respond to this great treatment, we could be looking at a maintenance medication program in 12-18 months!! His doctor said that he is very impressed with how Blake is handling this phase of life. There could be some changes with his diet, but we will wait and see what comes of that (waiting to hear from the nutritionist at Phoenix Children's Hospital).
One of the side effects of this disease are the possibilities of tremors in the hands. Blake does present with this issue and we are watching him closely to assure that it doesn't effect his daily functions, especially in school. The blessing in this is that this tremor is only evident through "concentrated gross motor skills" (putting the lid on toothpaste, taking the wrapper off of a straw, etc); basically meaning you don't see it unless you know about it or are looking for it.
We once again are thrilled with the team at PCH and the care that they give our son. Dr.McOmber is so invested in Blake that we have no concerns for his well being.
The best part in all of this, is knowing that there are so many people praying for Blake. It is is evident. Our God is good! Our God is faithful!




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